2020 Volunteer Leadership Conference: Until CF Stands for Cure Found

Mar 13, 2020 ‐ Mar 13, 2020



Sessions

Welcome: Entering A New Era in CF

Mar 13, 2020 1:00pm ‐ Mar 13, 2020 1:50pm

Identification: VLC20-01

Cam C. McLoud, board chair, will introduce the conference, followed by an overview provided by conference co-chairs Julie Riedy and Ray Poole. Michael Boyle, MD, president and chief executive officer, looks ahead to the future as we enter a new era in CF.

Speaker(s):

Our CF Story:  My SquadOur CF Story: My Squad

Preview Available

Our CF Story: My Squad

Mar 13, 2020 1:50pm ‐ Mar 13, 2020 2:20pm

Identification: VLC20-02

Our squads are ever evolving and important for our survival. They make life’s lows more bearable and the highs more joyful. Panelists will discuss how their traditional and non-traditional squads show up for them and their ever-changing needs throughout their CF journeys.

Moderator(s): Panelist(s):

RelentlessRelentless

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Relentless

Mar 13, 2020 2:30pm ‐ Mar 13, 2020 2:45pm

Identification: VLC20-03

Marc Ginsky, executive vice president and chief operating officer, will offer his perspective on the power of being a relentless volunteer and champion for those living with cystic fibrosis.

Speaker(s):

Until CF Stands for Cure Found: Research and Medical Update

Mar 13, 2020 2:45pm ‐ Mar 13, 2020 3:45pm

Identification: VLC20-04

Join Foundation President and Chief Executive Officer, Michael Boyle, MD and other Foundation staff as they highlight the latest developments in our drug pipeline, discuss how our care model is evolving to meet changing needs, and provide an update on the Foundation’s Path to a Cure – the ambitious research agenda focused on developing treatments for all people with CF and ultimately, a cure. Also, hear the latest on the Infection Research Initiative, including the latest studies aimed at tackling infections.

Moderator(s): Panelist(s):
  • Ann Field, PhD, Senior Director, Drug Discovery and Development
  • William Skach, MD, Executive Vice President and Chief Scientific Officer
  • JP Clancy, MD, Vice President, Clinical Research

ClosingClosing

Preview Available

Closing

Mar 13, 2020 3:45pm ‐ Mar 13, 2020 4:00pm

Identification: VLC20- 05


Leadership Council: Volunteers Making a Difference

Mar 13, 2020 3:45pm ‐ Mar 13, 2020 3:50pm

Identification: VLC20-05a

Mike Beatty, Esq., chair of the Foundation’s National Leadership Council and CF parent – will recognize the 2020 Leadership Council members for their outstanding efforts to advance the Foundation’s mission.

Speaker(s):
  • Mike Beatty, Esq., Leadership Council, National Board of Trustees

Until CF Stands for Cure FoundUntil CF Stands for Cure Found

Preview Available

Until CF Stands for Cure Found

Mar 13, 2020 3:50pm ‐ Mar 6, 2020 4:00pm

Identification: VLC20-05b

Maureen Fraser, senior vice president of field management, Molly Riley, vice president of volunteer and donor engagement, and our co-chairs Julie Riedy and Ray Poole will close out the 2020 Volunteer Leadership Conference.

Speaker(s):
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