CFF VLC 2022

Jul 23, 2022 ‐ Jul 24, 2022



Sessions

Coffee For Adults with CF iconCoffee For Adults with CF

Preview Available

Coffee For Adults with CF

Jul 23, 2022 9:15am ‐ Jul 23, 2022 9:45am

Identification: 1

Hosted by Adult Advisory Council


Welcome iconWelcome

Preview Available

Welcome

Jul 23, 2022 10:00am ‐ Jul 23, 2022 11:20am

Identification: 2

Michael Boyle, MD, president and CEO of the Foundation, will introduce the conference, followed by a tribute to and remarks from retiring Chair of the National Board of Trustees, Cam McLoud, and remarks from the incoming Chair, KC White. A conference overview will be provided by co-chairs Julie Riedy and Ray Poole.

Virtual attendees, stay tuned for a special livestreamed segment, the Catch Up, where we will catch up with in-person volunteers immediately following this session.

Speaker(s):
  • Michael Boyle, MD, President and CEO, Cystic Fibrosis Foundation
  • Ray Poole, 2022 Volunteer Leadership Conference Co-Chair
  • Julie Riedy, 2022 Volunteer Leadership Conference Co-Chair
  • Cam C. McLoud, Immediate Past Chair and Current Member, National Board of Trustees
  • KC White, National Board of Trustees Chair

Advocacy in Action: Addressing Antibiotic-Resistant Infections | Mission Moment

Jul 23, 2022 11:30am ‐ Jul 23, 2022 12:55pm

Identification: 4

Scientists worldwide agree that innovation is needed to address the shortage of effective antibiotics. Our Infection Research Initiative supports much-needed research and development, but new policies are needed to promote a sustainable, robust antibiotics pipeline and a marketplace that rewards innovation. During this panel, attendees will learn more about the Foundation’s commitment to funding and advocating for solutions to address the need for novel antibiotics to prevent antibiotic-resistant infections.

Virtual attendees, stay tuned for a special livestreamed segment, the Catch Up, where we will catch up with in-person volunteers immediately following this session.

Speaker(s):
  • Ella Balasa, Virginia Chapter volunteer
  • Tiffany Burnett, Senior Director, Biopharma Programs, Cystic Fibrosis Foundation
  • Mary Dwight, Senior Vice President and Chief Policy & Advocacy Officer, Cystic Fibrosis Foundation
  • Kevin Outterson, Executive Director and Principal Investigator, CARB-X, Professor of Law, Boston University
  • Patrick Simpson, Southern California, Orange County Chapter volunteer

Organizing for Effective Advocacy: Celebrating the Congressional Captains Program

Jul 23, 2022 1:00pm ‐ Jul 23, 2022 2:00pm

Identification: 10

Celebrate the success of the Congressional Captains program and the impact of volunteer leaders in their communities and with members of Congress. In this session, you will learn more about this volunteer-driven initiative and its accomplishments since the program’s launch in 2020.


Ready, Set, Connect! The New Era of Hybrid Engagement for Chapter Boards, Grampions, and CF Foundation Cares

Jul 23, 2022 1:00pm ‐ Jul 23, 2022 2:00pm

Identification: 7

Are you ready for the next era of volunteer engagement? Join our panel of pros to hear how they are engaging their communities in a new hybrid setting. You will leave with new ideas to connect with your local volunteers and will have the opportunity to ask questions specific to your areas of interest.


Tomorrow's Leaders: Become a Change Agent in the Fight for a Cure

Jul 23, 2022 1:00pm ‐ Jul 23, 2022 2:00pm

Identification: 8

Join Tomorrow's Leaders as they build the community that will finish the fight for CF. During this session, you will hear from members across the country about their involvement with the CF Foundation and the Tomorrow's Leaders program. You’ll also learn best practices to expand recruitment efforts, grow local programs, and become a change agent for the CF community.


Wellness and the CF Community iconWellness and the CF Community

Preview Available

Wellness and the CF Community

Jul 23, 2022 1:00pm ‐ Jul 23, 2022 2:00pm

Identification: 9

Join the conversation about why and how wellness matters in managing cystic fibrosis. This session will highlight stories from Foundation Impact Grant and Community Support Grant awardees and offer participants the chance to connect and share what wellness means to them.


A Conversation With CF Foundation Corporate Collaborators

Jul 23, 2022 2:30pm ‐ Jul 23, 2022 3:30pm

Identification: 12

Hear how our corporate volunteer leaders successfully engaged their organization and inspired others to support their efforts. In this dynamic panel discussion, you can participate in a wide variety of collaborative experiences and hear from young professional champions who will share their successes in corporate engagement.


Milestones III: What is Your Dream?

Jul 23, 2022 2:30pm ‐ Jul 23, 2022 3:30pm

Identification: 13

Take a deep dive into Milestones III - Driven by a Dream. Learn more about the Campaign, how to become involved, and how to successfully engage others. You will hear stories from your peers on why they are motivated to support the Campaign, how they have invited others to participate, and what you can do to take action. Together we can make our dream to cure CF come true!


More Than Just an Event: Building Connections That Last Well Beyond Event Day

Jul 23, 2022 2:30pm ‐ Jul 23, 2022 3:30pm

Identification: 14

Discover how to maximize your team’s fundraising potential and see your event as more than just a walk, run, ride, hike, or climb. Hear from volunteers across the country about how to engage with volunteers, expand your reach, creatively fundraise, and make connections in the CF community.