Ella_Balasa

Ella Balasa

Virginia Chapter volunteer

Ella is a person with cystic fibrosis, a writer, a patient advocate. Having a science education and having worked in a microbiology lab, she has utilized her knowledge and health experiences in her involvement serving on various research committees -- including the CF Foundation Infection Research Steering Committee and Protocol Review Committee. She was a co-chair for the inaugural CF virtual research conference, ResearchCon, and was named the 2019 CF Ambassador for the Virginia Chapter. She is an advocate for the development of novel therapies for the treatment of antibiotic-resistant infections and speaks publicly at conferences, meetings, and to companies about the value of patient perspective in healthcare. Through her passion for writing, she distills clinical information for patient communities, and shares about the hardships yet triumphs that comes with living with a chronic illness. She aims to affect the healthcare landscape by raising awareness of rare diseases, promoting self-advocacy to patients, and providing valuable insights to organizations. When she is not taking care of her health, she enjoys spending time with friends and traveling as much as she is physically able.


Appearances